Board of Directors

 

NASHA FITTER

CEO, Head of Research
Nasha Fitter co-founded the FOXG1 Research Foundation shortly after her daughter Amara was diagnosed with FOXG1 syndrome. She is dedicated to leading our research strategy to find a cure for every child in the world who has FOXG1 syndrome.

A  technology entrepreneur,  Nasha was the founder and CEO of tech startup Schoolie, which was acquired in 2016 by GreatSchools. Nasha currently heads data acquisition and patient experience at Ciitizen, a company focused on helping cancer patients acquire and share their health data digitally. Previously, she was a Director at Microsoft Corp where she held various management and product development positions, including Chief-of-Staff for Microsoft's billion dollar education division.

 

Nicole Johnson

President, Communications
Nicole Johnson is a co-founder of the FOXG1 Research Foundation and mother to seven-year-old Josie, who has a severe mutation of the FOXG1 gene. With more than two decades of experience in media and communications, Nicole leads our communications and marketing strategy and wears many hats as the foundation President. Nicole was a founding partner and the Director of Communications of the OTT streaming music service, Qello Concerts that was sold to publicly traded company Stingray in 2018. Prior to starting Qello in 2007, Nicole worked many years as a producer for CNN and for NBC , and then moved into corporate communications for several Fortune 500 companies. Nicole is also a member of the East lake Consulting team based in New York.

 

Angie Van Wingerden

CFO, Operations
Angie Van Wingerden joined the FOXG1 Research Foundation in 2018 when she volunteered to manage the first FOXG1 scientists symposium in 2018 and knocked it out of the park. As the mom to 15-year-old Eila, who has FOXG1 syndrome, Angie is dedicated to helping drive the FRF to find a cure. As CFO, Angie keeps our finances in check and also oversees operations. Angie is a focused, logistics dynamo with 22 years of experience in the events industry. Since obtaining her BA of Commerce in Hospitality from the University of Guelph, she has built an impressive portfolio of corporate events, including fundraisers, galas, conferences and symposiums. She brings superior organizational skills and ability to manage logistics, and large teams. She has vast knowledge in software programs to best manage our structure and operations across the globe.

 

Magdalena Labbe

Secretary
Magdalena joined The FOXG1 Research Foundation Board of Directors in August of 2019 just a few months after her son Diego, was diagnosed with FOXG1 syndrome. Magdalena and her family live in Chile and soon after Diego’s diagnosis, she hit the ground running searching for grants and ways to help fundraise. Magdalena has a strong business management background with more than 15 years experience in different executive human resources roles for global companies; she has a proven track record of leading geographically diverse and multicultural teams.

 

Nicolas Paolini

Board Member
Nicolas helped launch the FOXG1 Research Foundation in 2017 when he kicked off fundraising in France and raised the first $500K! He officially joined the Board of Directors in 2019 with a focus on global fundraising. Nicolas is the father of Lou-Ann, a 5 years old little girl with a FOXG1 duplication. Nicolas’ career began in Spain and then to China where he lead a purchase unit and managed different hypermarkets. While in China he met his wife and in 2012 they moved back to France. In 2015 Nicolas became the Marketing Director for Carrefour France where he now leads the Cultural Department. Outside of work and fundraising, Nicolas is busy taking care of his growing family and training for extreme running events to raise awareness for FOXG1.

 

Scientific Advisory Board Liaison

 

ELLI BRIMBLE

Scientific Advisory Board Liaison
Brimble serves as FOXG1 Research’s Scientific Advisory Board Liaison to facilitate communication with research communities. She is a genetic counselor in Child Neurology at Stanford Children’s Health, where she is working to develop a FOXG1 multidisciplinary clinic. Brimble completed her undergraduate training in genetics at Western University in Ontario, and Masters degrees in molecular genetics and genetic counseling at the University of Toronto and Boston University, respectively.

Brimble’s primary clinical and research interests are to improve understanding of genetic mechanisms that contribute to epilepsy, and to develop protocols that ensure comprehensive and consistent evaluations for genetic epileptic encephalopathies.

 

HOURINAZ BEHESTI, PHD

Scientific Advisory Board Liaison
Dr. Behesti obtained her PhD in developmental biology from University College London (UCL), studying the genetic control of patterning and growth during eye development. Later, she carried out postdoctoral research at the Rockefeller University (New York), studying the cellular and molecular functions of an autism-risk gene in the cerebellum. As a Developmental Neurobiologist, she is interested in the molecular control of early brain development and function and her research is currently focused on derivation of human cerebellar neuronal subtypes for the purpose of modeling human brain development and disease.

 

Worldwide Team Leaders

 
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Bonnie snoeK

Worldwide Registry Lead
Netherlands
bonnie@foxg1research.org

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CHRISTINE REVKIN

FOXG1 Research Co-founder
Switzerland

christine@foxg1research.org

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Anouk Brunschwiler Eidam

Switzerland
anouk.brunschwiler@gmail.com

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Nicolas Paolini

France
nicolaspaolini@yahoo.fr

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CHriSTOPHE LE NEZET

France
christophelenezett@gmail.com

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STEPHAN SCHRoder

Germany
info@foxg1.de

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Tina burri

Germany
burri.tina@gmail.com

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marco kobusch

Germany
marco.kobusch@t-online.de

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benjamin brudler

Germany
brudler@gmail.com

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MAGGIE DUNHAM

Caregivers Committee

United States
msheipe@verizon.net

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leticia piccoli

Brazil
lepiter@gmail.com

 
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Judith Shepard

England
ju.sheppard@binternet.com

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JUNE HUANG

Taiwan
june438@gmail.com

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David Hamburger

USA Fundraising Committee
david@foxg1research.org

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