Our Mission


It is the mission of the FOXG1 Research Foundation to accelerate research to find a cure for FOXG1 syndrome.

We will fund the world's leading scientists that are integral along our Path to a Cure for all children with FOXG1 syndrome. We will continue to apply our research to solve all related brain disorders. FOXG1 is the super hero "master regulator" gene that could save millions of children with various brain disorders. We will not stop until every stone is unturned.   

We are dedicated to:

  • Finding a cure for ALL children with FOXG1 syndrome in the world

    • (all ages, all mutation types, all geographies).

  • Providing equal access to a cure for ALL children with FOXG1 syndrome in the world.

  • Continuing to uncover the links between FOXG1 and related brain disorders in order to solve these brain disorders affecting millions of children/people.

How will we do this? We will:

  • Invest in research

  • Fundraise to invest in research

  • Maintain a clear strategic roadmap to a cure

  • Strive to be within the top 1% of patient advocacy groups vying for biotech investment, like RETT Syndrome Research Trust, Grace Wilsey Foundation, and CureDuchenne

  • Lobby the best scientists in the world to work on FOXG1, keep constant contact with biotechnology companies focused on CNS disorders

  • Maintain the highest standards of fiscal responsibility

  • Maintain efficiency and integrity

  • Collaborate with foundations, scientists, professionals, biotechs, philanthropists, and parents across the globe