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Rare Disease Day at UB

  • Jacobs School of Medicine and Biomedical Sciences (map)

Diagnose Earlier, Treat Smarter: Innovations in Rare Disease Patient Care

Join the University at Buffalo as they come together to raise awareness of rare diseases through education, networking, and advocacy. This event aims to inspire UB students, faculty and staff, and community partners to recognize what it means to care for rare.

As part of the program, attendees are invited to a featured lecture, “FOXG1 Research: From Bench to Clinical Trial”. The session will explore how collaborative science, advocacy, and urgency can move rare disease research forward.

Featured Speakers:

  • Soo-Kyung Lee, PhD – Empire Innovation Professor, Om P. Bahl Endowed Professor, Department of Biological Sciences; Director, FOXG1 Research Center, University at Buffalo

  • Gai Ayalon, PhD – Chief Drug Development Officer, FOXG1 Research Foundation

  • Ryan Phillips – Parent Advocate and Chief Financial Officer, FOXG1 Research Foundation

Register
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February 25

Charles River Laboratories FOXG1 Family Day
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March 26

Soirée Lyrique pour FOXG1 | An Evening of Music for FOXG1