We are living in a time when diseases are being cured. There are new treatments being developed for conditions like ours and we are at the forefront of the research for FOXG1 syndrome.
We will stop at nothing to give all of our incredible children the life they deserve.
1. You are not alone.
We are a worldwide team of FOXG1 parents dedicated to finding a cure and supporting you along this journey.
We have all been where you are now and we understand all the emotions you are experiencing. You have a FOXG1 family to support you.
Register Your Child in the Global FOXG1 Registry
Register your child right away as a FOXG1 patient in the FOXG1 Patient Data Center. This is the most important area of our website where both parents and clinicians come to help advance the path to a cure! Start your child’s Dashboard here.
Join this special private group on Facebook to openly discuss all research, special-needs parenting, special resources, and just life as a FOXG1 parent.
Set up a Zoom meeting with our cofounder and Executive Director, Nicole Johnson HERE
Follow Us on Social
Create Your Own Fundraising Team!
When you’re ready, you can create a personalized Fundraising team for your FOXG1 child and help us fund the incredible scientists who are working on therapies and ultimately a cure for FOXG1 syndrome.
