Would you like to contribute to the FOXG1 Research biobank?
The US National Institute of General Medical Sciences (NIGMS) has started a FOXG1 Patient Biobank for FOXG1 patients located anywhere in the world. This will enable scientists to access samples for research (totally anonymized).
NIGMS is accepting blood and skin samples from FOXG1 children (or adults) and from their parents and siblings as well. Immediate family samples are great, but most important is the FOXG1 patient. The FOXG1 Research Foundation will be initiating a deep study of biopsies, and participating families may gain in-depth information about how each child's biology is affected by his/her mutation.
It’s very easy to do. They will send you a kit for your doctor to use and easy directions how to send it back.