When we lose a member of our FOXG1 family, our worldwide community grieves.
To our FOXG1 children who have passed, we will always remember and honor you.
We hold you deep in our hearts. You will always inspire us to continue our relentless work to change the face of FOXG1 syndrome and find a cure. We only wish we could have done it sooner.
Curtis James Gilkes
July 16, 2004 - Nov 3, 2023
Australia
Valeria Ponce Orendain
April 3, 2017 - July 3, 2023
Mexico
Moseley Collins
September 17, 2012 - June 17, 2023
Florida, USA
Noah Cox-Lee
December 19, 2017 - May 17, 2023
UK
Jack Gilvarry
December 10, 2009 - May 10, 2023
UK
Prescilia Gueux
March 22,1995 - February 23, 2023
France
Robert
2010 - January 3, 2023
UK
Iris Embla
October 9, 2011 - January 1, 2023
Iceland
Sorin Sargent
March 29, 2013 - December 25, 2022
Delaware, USA
Ellissa Summer
Dodd
Aug 16, 2015 - October 17, 2022
UK
Sergio Gabriel Kuzia Andreasson
November 8, 2020 - July 8, 2022
Iceland
Courtney Bernadette
Limberg
September 6, 2007 - June 16, 2022
Kentucky, USA
Joshua Jones
December 20,2009 - May 17, 2022
UK
William Greyson Jones
June 1, 2019 - April 5, 2022
Kentucky, USA
Kirian Morón
November 3, 2011 - March 29, 2022
Sementina, Switzerland
Cameron Pate
December 15, 1997 - February 25, 2022
UK
Zion Griffiths
June 5, 2018 - February 24, 2022
Wales, UK
Samuel “Sammy” Isaac Smuk
March 1, 2016 - July 9, 2021
Ohio, USA
Jared Allan Larson
April 16, 2004 - January 15, 2021
USA
Omar Amar
February 20. 2016 - February 24. 2020
Spain
Cillian Shanahan
December 7, 2017 - November 21, 2019
Tipperary, Ireland
Mason Palmer McGinnis
July 18, 2015 - December 31, 2019
Virginia, USA
Faith Isabella May Edward
November 11, 2006 - November 06, 2019
Australia
Hudson Jarrett
November 22, 2018 (under 1 month old)
Australia
Suvir Shah
September 26, 2018
New Jersey, USA
Zoe Raeanne Livingston
August 22, 2015 - November 19, 2017
Idaho, USA
Shannon Bromley
February 11, 1993 - March 28, 2017
Canada
Ben Zgorski
August 3, 1991 - October 7, 2016
Maryland, USA
Gary Akima
January 5, 2012 - February 11, 2016
Oklahoma, USA
David Adema
September 23, 2013 - January 22, 2016
Flevoland, Netherlands
Archie Green
September 23, 2009 - January 9, 2016
UK
Michael Jerome “Mikey” Adamo
January 21, 2014 - December 25, 2015
California, USA
Béatrice Fortier
July 13, 2012 - February 12, 2015
Canada
Lennon
2012 - 1 year old
UK
To contact us please email: [email protected]