New York Times: Infinitesimal Odds: A Scientist Finds Her Child’s Rare Illness Stems from the Gene She Studies

New York Times feature titled: the infinitesimal odds -tells the story of a scientist discovering that her daughter’s rare disease, FOXG1 syndrome, is caused by the same gene she has been studying for years. Since this article that was written in 2018, Dr. Soo-Kyung Lee has developed a gene replacement therapy for FOXG1 syndrome that is beginning first in-human clinical trials in 2026.