Leaders from 14 countries across four continents gathered in Paris for the first-ever in-person FOXG1 Global Leadership Meeting — a historic moment eight years in the making, filled with gratitude, gene therapy updates, and a surprise $100,000 donation from Italy.

Nicole Johnson shared the FOXG1 story with new supporters in Paris, followed by a moving classical recital that included the live debut of "Who I Am" — a song written for children with FOXG1 by artist Isabella Coulstock.

Isabella Coulstock performed "Who I Am" as her voice filled the space, a video played — a montage of Josie's life, her happiness, her hard times, the big heart that takes her mommy's hand. FOXG1 families felt seen. Those newer to the cause felt the door open wide. Many were in tears. All of them reminded, in the span of a few minutes, exactly why this work matters — and who it is for.