FOXG1 Syndrome Earns Unique ICD-10 Code: QA00.151

The FOXG1 Research Foundation is proud to share that FOXG1 syndrome has officially been granted its own ICD-10-CM code — QA00151 — by the CDC, effective October 1, 2025. This milestone, years in the making, gives FOXG1 families long-overdue visibility in the healthcare system. With a dedicated code, clinicians can record FOXG1 in medical records, insurers have stronger grounds for coverage, and researchers can more accurately track patients — a powerful step forward for our community and for rare disease recognition.